July 23rd, 2017 by ForestSimon

ED media coverageThere has always been a need for mental health issues to gain greater media coverage to ensure wider understanding and breaking of associated stigmas. Thankfully, over the past few months, there have been a number of high profile campaigns to ensure this has happened, and I’m glad to see that on the subject of eating disorders there have been a few stories run. I myself have been both the subject and included in a few of these stories, and have always agreed to do them for that purpose; to help educate and encourage anyone suffering who hasn’t already got help to do so.

Tomorrow (24th July), BBC Panorama will be broadcasting a programme called ‘Men, Boys, Eating Disorders’ featuring international rugby referee Nigel Owens, MBE. Nigel has been struggling with bulimia for the past 27 years and will tell his story and meet other sufferers throughout the programme. Some of his story has been published today on the BBC news website and can be read here.

I’m full of admiration for Nigel for sharing his story in such a public way, especially in view of his profile, and really hope that this will do exactly what is needed – both educate and inspire those who are suffering in silence to get help. Also, as a man, I hope that it will again show that eating disorders don’t discriminate. They aren’t confined to teenage girls, they can affect anyone regardless of gender, age, sexual orientation, colour of skin or whatever. They are real, legitimate, debilitating and vile illnesses that destroy lives. I urge anyone that can to watch the programme and really try to understand what sufferers go through, as hard as I know it is to understand.

Of course, media attention and understanding of these matters are only one part of a wider issue. The focus needs to continue, and the media coverage needs to maintain in order for people to continue to be educated and inspired to get help. However, in order to get the help needed there needs to be the support services and right treatment available. As I said in my last blog post I have withdrawn from social media in terms of posting about my illness and I’ve stuck to it. I have continued to use it for posting about everyday things, but on the subject of my own health I have said nothing, even when asked. The truth is I continue to be very unwell. Anorexia is grinding me down, depression has crept in and I’m heading toward my lowest weight at any point since I was diagnosed. All eating disorder support that was previously there has now been withdrawn.

As I discussed in that last blog post the ultimatum was day treatment or a “therapeutic break.” As I said then I know in honesty day treatment would cause me far more damage than good and that I’m honest enough with myself to know exactly what I need. However, the commissioners won’t allow it, the NHS cuts being such that the money and options aren’t there, and so I’m without the help I need. Where this will end I don’t know (sorry, I’m repeating myself) but I’m numb to the worry of it. I’m a hamster in a wheel, days are all the same, anorexia has become the larger part of me and I haven’t got the treatment options open to me to help me to fight it.

I don’t believe this is the case for all, however. I think this is a case of a ‘postcode lottery’ and that because Gloucestershire has the day treatment option it’s something that has to be tried first. Truth is I have, it’s just that they insist I try again, ignoring my own thoughts on the subject. There has to be flexibility, they just won’t budge. There’s enough of my mind intact to know what’s damaging and not in terms of treatment. C’est la vie. In other areas of the country I know that treatment options are a lot better for people. Don’t be put off by what’s going on for me – GET THE HELP YOU NEED as soon as you can and be forceful. Meanwhile we must push government for more funding into the NHS for mental health care. Nobody should be held back from options based on where they live, nobody should have anything but the full range of options open to them and EVERYONE should have a voice in their treatment.

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